Cerebral palsy

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The analyzed research study involved a sample of 27 patients struggling with Cerebral Palsy utilizing the Lifestyle Assessment Questionnaire. 11.1% of patients described severe effects related to quality of life, 25.9% reported moderate impact on QOL, and 37% reported mild impact on QOL. Findings indicated that the variety of care and quality of care have the most predictable impact on QOL. Cerebral Palsy and Quality of Life: Patients and their Families Introduction The complex combination of physical problems and emotional issues associated with Cerebral Palsy oftentimes reduce the quality of life of children suffering from this disease. Caregivers that are charged with taking responsibility for children with Cerebral Palsy are often burdened with a variety of sociological and psychological challenges such as dealing with recurring sleep disorders (Newman, O‚ÄôRegan Hensey, 2006) and impaired communication with others in the social environment. As such, it is important to determine how the severity of symptoms associated with the disease impacts quality of life for the child and their familial caregivers. The differences in QOL between care systems in developed countries and non-developed countries is an especially important variable in determining quality of life, making it important to study how to improve or sustain quality of care for children suffering with Cerebral Palsy to improve QOL worldwide. … Having to deal with the complexities of physical symptoms combined with emotional disturbances often places significant stress on parents and other caregivers (Mihaylov, Jarvis, Colver Beresford, 2004). This can radically decrease the quality of life for not only the child, but the familial dynamic. Children suffering from Cerebral Palsy often experience intense pain coupled with fatigue with even more severe symptoms including permanent vision loss (Hirsh, Gallegos, Gertz, Engel Jensen, 2010). All of these symptoms prevent the child from achieving self-care, which is an autonomous method of performing common lifestyle activities such as bathing, eating and even dressing oneself, demanding that the child seek alternative care methods that include professional assistance or even more reliance on family members to perform these activities. Again, the burden of attempting to provide care dramatically impacts the quality of life, especially for caregivers. Unfortunately, in most instances, Cerebral Palsy is a progressive disease, meaning that the quality of life for the individual becomes increasingly less positive as the full range of their disabilities absolutely prevents self-care well into adulthood assuming that the child maintains a reasonable life span. Quality of life is also impaired for both the child and family members due to the high financial costs of providing care to the child. Research indicates that it costs, on average, $43,431 per year to provide care to children suffering from this disease (Cerebral Palsy Alliance 2012). Only approximately 33 percent of these costs are absorbed by the Federal government in the form of welfare programs or other supplementary care provision. This could have serious implications for children not only